Thursday, October 10, 2013

Legless MSer.

So there's these odd things that happen with MS.  There's blurry eyes after a hot shower, a finger that just feels like it wants to move, scalp that's divided right down the center with sensations that are different on both sides, just to name a few.

Then there's this:  I was laying in bed and it dawned on me that I didn't know where my legs were.  Now, of course, I knew in my mind where my legs were but it felt like they weren't there.  I moved them so I could feel where they were.  My mind made the connection then but what an odd thing to lay in bed and feel like your legs are somehow missing.

When I had significant back pain my chiropractor told me that I should lay in bed with my "hip stacked", they should be in direct line one on top of the other.  Every night that I have a little ache in my back I remind myself to stack my hips but I never know if one is leaning more back or forward without feeling my top hip.  It's just like I lose all sense of where my body parts exist once the lights are out.

I also have trouble walking in the dark, I do a sort of shuffle and try to grab the visual cues I can, digital clock, moonlight through the skylight, in order to just stay upright.  It's a proprioception issue and I suppose that may account for my other strange, detatched body parts feelings, too.

It would be an interesting trick, with Halloween looming, if I could make those legs disappear to those around me, just for the night.  May as well get a free costume out of this MS beast, eh?

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