Tuesday, April 30, 2013

Dragging butt to bed and sleeping fatigue day.

My day started pretty well for the first half hour.  I got up, made my daughter lunch, signed her agenda and said goodbye while eating my banana with peanut butter, drinking milk and taking my morning pills.  I felt pretty normal, my always tired but still functioning normal.

I fought the fatigue thinking that some tea and general movement would do the trick to keep me upright.  I was wrong.  By 9:30 I was in bed and slept for a couple of hours.  I got out of bed only because it seemed like I should eat.  Lunch was a toss together easy to grab stuff out of the fridge (1/2 red pepper, part of a carrot [cut from meals last week] and a mini cucumber with a few slices of hard salami and some pretzels along with the obligatory Mountain Dew).  The Mountain Dew was surely the trick to keeping me up for a whole hour and a half before I was back in bed again for 3 hours.

My dear husband picked up Jimmy Johns subs after I called and gave him the I'm still laying in bed and there's no way I can make dinner chat.

This, my friends, is fatigue.  If someone with MS ever tells you they're tired, don't say "I get tired, too", unless, of course, you also have MS or some other debilitating disorder and truly understand.  I've heard the need to sleep with MS referred to as taking a "death nap".  That's the best description I have ever heard.  This is the sleep is not optional, lay down before you fall down kind of tired.

It's the I pissed away my whole day in bed with last night's pajamas on kind of tired.  It's the if I smell bad it's because I was afraid I'd fall down in the shower kind of tired or I'd fall asleep in the tub and drown kind of tired.  My tired is not 5 Hour Energy will cure it tired or a 3:00 coffee break will get me to closing time kind of tired.  My tired is the wow, you took meds that they give to narcoleptics and still fall asleep tired.

Fatigue is a different ballgame, folks.  Everyone strikes out and there are no winners. Worst.  Game.  Ever.

P.S.  Here I sit writing this at almost 11pm and I felt better than I had all day starting about an hour ago.  Go figure.

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