Let's put the chronic, incurable, debilitation disease aside for a moment and focus on little, stupid, annoying MS things.
It feels like I have sunburned feet tonight. I keep looking at them thinking that they must be burned and see the pale, white skin, barely touched with sun. Over and over in my head it rolls and I keep reminding myself that my feet only saw 10 minutes, tops, of sunlight today and about the same yesterday nevermind the fact that they aren't actually red.
Sometimes my pinky fingers feel numb, like if I didn't know I had pinky fingers I wouldn't know they exist.
I have the odd, invisible line on my body from the top of my head to the tips of my not-sunburned toes that divides my body in half. Left side, normalish. Right side, not so much.
Silverware is not always safe around me as well as my fellow diners. I have flipped many a fork or spoon right out of my hand and across the table. This has happened with writing utensils as well.
If I stand so I feel perfectly balanced I have to put so much weight on my right side that I nearly tip over.
It's hard to walk with ice packs strapped to your feet and it's hard not to look like a complete dork with the freebie cooling vest filled with ice packs strapped to your body.
My vision and balance are affected by the heat.
I get random bouts of nausea and vomiting. I'm not sure if that's the MS, though, or a mild version of Cyclic Vomiting Syndrome (yes, I'm into self-diagnosis now, too).
It's hard to find shoes that feel normal with abnormal feeling feet. Avia and Birkenstock are my favorites!
People act jealous that they don't get to take a nap during the day. "Boy, that must be nice." I read a shirt that said, "A nap is only nice when it's a luxury not a necessity." Boy it must be nice to be able to stay awake for a whole peckin' day.
I would love to be able to work on eBay sales like a full-time job, heck a part-time job would do. My goal is to work on it an hour a day but I don't often make that goal, either. I'm just too tired.
Well there's surely more. Anyone else have some to share?
Itchy ears are very, very annoying but even more so is the invisible spider crawling on my legs. I had that invisible line dividing my body in half same as you - spooky feeling.
ReplyDeleteOoh, kind of like the loose hair on random parts of your body that isn't really there.
ReplyDelete